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Helping People with Disabilities…

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Finished a three-mile walk, Mason is tired but he kept those little four legs moving.  He was ready to go back to bed; me I am ready for coffee.  It is a beautiful day here in Wisconsin.  Therefore, today I tackle “Rain, Fire, Secrets and Lies”.

It may possibly be a series as there are six families…do not know where it is going I am just going to keep writing until it makes sense as to what direction I need to go.

July 21, 2010, will be the seventh anniversary of my daughter Charlotte’ death.  The last ten years of her life, she was involved in such programs below.  My appreciation goes to the person who writes these articles, they are important.  I realize that it is long, I hope you have time to read it all, and support such programs located near you.

Have a great Tuesday and I will try to check in on as many blogs as possible today.  Hugs

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Medicaid Cuts In Wisconsin Would Undermine Training For Adults With Disabilities

June 14, 20172:32 PM ET

Alison Kodjak

It’s morning meeting time at Our Place Day Services, a day center for adults with disabilities, housed in a small concrete and glass building on Lovers Lane in Slinger, Wis.

About 30 people are gathered here, around a long table, reciting the pledge of allegiance. One man paces alongside the table, another sits in a wheelchair a few feet away. There’s a woman holding a baby in her lap and a friendly dog — a goldendoodle — wandering around greeting people with a sniff and a lick.

A modest operation based north of Milwaukee, on Interstate 43, Our Place serves as a safe place for people with severe cognitive disabilities to spend their days and learn news skills while the family members who usually care for them are at work.

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Clients at Our Place can participate in fun activities — do art or go bowling with staff from the center — and they also work on specific skills like money management or cooking. The center provides the sort of crucial support services that many people are concerned will no longer be offered if Republicans proceed with their planned cuts to Medicaid.

On this Monday morning, the clients at Our Place are sharing their goals — big and small. One man wants to finish a mosaic he is working on, while a woman down the table says she hopes to go to the movies with a friend someday.

Danielle Wirsbinski reads from a long list.

“To have a job, to do more volunteering, learn new skills, talk …. Taking classes go to school, to live on my own,” she says.

Another group member, Eric S. (who asked that we not use his last name because he is not comfortable going public about his condition), describes the work he is doing to be able to live on his own someday.

“Learning how to cook with Justine. Justine teaches me how to shop,” he says, referring to Justine Orr, a staffer who works with him at Our Place. “I learn how to clean with Justine and I did safety skills in the home.”

“We help men and women become the men and women they were meant to be,” says Donna Ellenbecker, director of Our Place.

However, she is worried about the Republican plan to overhaul Medicaid.

All but one of her 33 clients pays for their classes and care at Our Place with Medicaid dollars. Wisconsin’s Medicaid system includes a program called IRIS that grants people with disabilities a budget, based on their level of need, to use for services that help them live in the community.

The state’s approach is part of a national trend in recent decades to move people with severe developmental disabilities out of institutional settings by providing the support they and their families need to live more independently – either with their families, in community-based group homes or even on their own.

“Many of our people are interested in having their own apartment someday, and are living with their parents now,” Ellenbecker says. “They really need some help with the everyday skills of cooking and cleaning and doing the things that everyone else does to be able to live independently.”

President Trump and Republicans in Congress want to restructure the way Medicaid is funded. Instead of paying for all the medical care and services beneficiaries need, the health care bill Republicans passed through the House last month would grant each state a fixed sum per beneficiary based on what the state has spent in the past.

That per-capita allowance would increase over time, but at a slower rate than health care costs generally rise. Therefore, the Congressional Budget Office estimates that Medicaid funding under the plan would be 25 percent less in 10 years than it would be under current law.

“We’re no longer going to measure compassion by the number of programs or the number of people on those programs but by the number of people we got off those programs,” White House Budget Director Mick Mulvaney said last month. “We’re no longer going to measure compassion by the amount of money that we spend but by the number of people that we help.”

While Medicaid is best known as a health care program for poor people, more than 80 percent of its budget goes to care for the elderly, children and people with disabilities, according to the Kaiser Family Foundation. Only 15 percent goes to health care for able-bodied adults, the people that Mulvaney was likely referring to in his remarks.

The program has been growing in recent years and it now makes up almost 10 percent of federal spending. That is why it is the top target in President Trump’s proposed budget, and figures prominently in the House Republican proposal to replace the Affordable Care Act, also known as Obamacare. Some estimates suggest the program could be cut by more than a trillion dollars over 10 years.

Nevertheless, some Republicans in the Senate, who are now hammering out their own plan to replace Obamacare, are hesitant to make such big cuts to services for the poor, elderly people and those with disabilities.

The people who come to Our Place each day are not likely to be among those who can “get off” Medicaid. They are likely to need care and support services for their entire lives.

Ellenbecker describes how her program helps people engage in the community.

“We actually have a class that’s a date,” she says. “You know, ‘how you go to the movies with a friend.’ ”

That everyday joy has a number of steps — you have to figure out transportation, money, movie times and simply how to choose a seat in a theater.

To navigate all that, the woman who had listed going to a movie as one of her goals “would need somebody to come with her to help her with all of those things,” Ellenbecker says, “because she doesn’t have the skills to be able to do it independently right now.”

Other group members benefit from a job coach who can help them learn how to find and do a job, or keep one. Others need help managing money, cleaning their homes or getting to work. And other clients have even more basic needs, such as personal care and help with eating.

Ellenbecker worries that if the current Republican plan is passed, or the kinds of budget cuts Trump is proposing go through, the money for those support services just will not be there.

“It’s a 25 percent cut you know, and a 25 percent cut it is going to affect these programs,” she says. “There’s no way that a 25 percent cut can come out of any other program — except long-term care.”

That’s because many support services are considered optional under the law that governs Medicaid. So, if state lawmakers are forced to choose between say, job coaches, and traditional medical care, the job coaching is likely to lose out.

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AMAZON.COM

 

 

 

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ANOTHER BAD DECISION BY DONALD TRUMP…

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Trump Administration Ends Rule for Whales and Sea Turtles

By NBC news

SAN FRANCISCO — The Trump administration on Monday threw out a new rule intended to limit the numbers of endangered whales and sea turtles being caught in fishing nets off the West Coast, saying existing protections were already working.

Economically, the new rule would have had “a much more substantial impact on the fleet than we originally realized,” said Michael Milstein, a spokesperson with the federal fisheries service, which killed the rule.

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The rule would have applied to endangered fin, humpback, and sperm whales, short-fin pilot whales and common bottlenose dolphins, as well as endangered leatherback sea turtles, loggerhead sea turtles, Olive-Ridley sea turtles and green sea turtles.

Summary of the Endangered Species Act

The official text of the ESA is available in the United States Code on FDSys, from the US Government Printing Office

16 U.S.C. §1531 et seq.

The Endangered Species Act (ESA) provides a program for the conservation of threatened and endangered plants and animals and the habitats in which they are found. The lead federal agencies for implementing ESA are the U.S. Fish and Wildlife Service (FWS) and the U.S. National Oceanic and Atmospheric Administration (NOAA) Fisheries Service. The FWS maintains a worldwide list of endangered species. Species include birds, insects, fish, reptiles, mammals, crustaceans, flowers, grasses, and trees.

The law requires federal agencies, in consultation with the U.S. Fish and Wildlife Service and/or the NOAA Fisheries Service, to ensure that actions they authorize, fund, or carry out are not likely to jeopardize the continued existence of any listed species or result in the destruction or adverse modification of designated critical habitat of such species. The law also prohibits any action that causes a “taking” of any listed species of endangered fish or wildlife. Likewise, import, export, interstate, and foreign commerce of listed species are all generally prohibited.

One-third of the world’s wild-caught fisheries are depleted because of overfishing, pollution and the effects of climate change. In some places, stocks have declined or collapsed due to illegal, unreported and unregulated fishing — hitting the coastal communities that rely on seafood for food and income the hardest.

As fish populations have dwindled, the aquaculture — or fish farming — sector now accounts for more than half of worldwide seafood production. Yet some aquaculture practices have degraded coastal ecosystems, polluting the oceans with waste and destroying critical habitats.

I cannot believe that our new president “Donald Trump” is sane, it appears that he has overturned, simply stopped so many “rules” that were in place.  I BELIEVE I CAN SUM IT UP BY SAYING THIS MAN IS SLOWLY DOING AWAY WITH WHAT SO MANY PEOPLE HAVE FOUGHT TO PUT IN PLACE TO SAVE THIS PLANET.  Donald Trump is not an American problem he is a worldwide problem.    The voters clearly made a mistake.  If there is an “anti-Christ”, he comes in the name of Trump.

Thanks for allowing me to vent in this post…I just cannot believe what I read when I turn on my laptop.  Have a great day everyone.  Ann

 

 

 

 

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The Future is dead… 

The homeless sleep in boxes hidden by tall and bushy shrubs, their last meal from a nearby restaurants dumpster; men, women and children, forgotten, shattered and despised; in the night, a hungry baby cries.  Veterans, White Collar, Blue Collar, all begging for food, living on the streets, no jobs to be found, families are no longer sound.  The Government talks end up in contradictions, lies, and the future “poverty” that is the prediction.  

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The spirit freezes, fruit of labors rot, life struggles persist, bad luck killing the heart and soul, hope ceases to exist.  Shifting winds turn into storms, will the world grow wiser, or will it be humbled and beaten back into servility?  Trust departed, a cardboard box in the streets is where the homeless make their beds, hope disappears and the future is dead.

 

©2017.elizabethannjohnsonmurphree

 

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Easter…for Me!

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At the age of three and yes, I can remember back that far!  Easter meant dressing in your best clothes and going to church.  There was always an Easter egg hunt at the church, which was lucky for me, as my mother believed it was a day to worship “The Father, the Son and the Holy Ghost”, not hide Easter Eggs. 

Daddy would put me into one of the two dresses I owned, both quiet plain and ugly, he brushed out my tight as coils hair and mother finished it off in a crown of corncob ringlets.  My mother and sister wore store bought dresses I wore hand-me-downs.  Armed with my one-pound lard bucket I was placed in the front seat of an old Army jeep.  We could only use it on nice days as the cloth top had been removed after the War!

In those days I did not realize that, everyone in the little Rural Grove Baptist Church was dress in their Sunday finery, and that only a few of us were labeled “share croppers” wore everyday clothes.  This did not matter when the service was over, all of the colorful eggs were found, Easter dinner of ham, and the trimmings were waiting at home. 

Daddy who refused to go to church would be waiting on the front porch of our tiny clapboard house, picking his banjo with a few of his farm hounds howling.  Even Soap sticks, our old mule brayed along with the dogs.  When my mother drove up the road, a silence fell across the land.  Relatives came from near and far for that Sunday feast, which she hated.

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By the age of six my mother made certain that I knew that there was “no” Easter Bunny, she may have been tired of me all year long refusing to eat the rabbits that my daddy killed on a regular basis as part of our food source.  I understood by the age of six that the only eggs boiled would go into the potato salad; coloring eggs was a waste of money, to hide them was a waste of time.  She no longer allowed me to hunt for the eggs at church.  By now, I knew why my daddy would never attend church, my sister left home and that left just mother and me. 

By the age of twelve, we had moved from the farm into the city, I was old enough to dress myself and I walked to church alone, for some reason my mother always stayed home with my daddy.  In her later years she returned to the church. 

The Easter Sunday that I turned thirteen, many of us were put into busses and cars to be taken to the backwaters of the Tennessee River to be baptized.  My mother never asks why my clothes were still wet and my hair hung down my back weighing a ton.  Daddy looked at me saying, “Well little girl they got you too”, the subject never came up again as relatives were piling into the front door greeted by the aroma of that big ham waiting for them.

By the age of sixteen, I was teaching Sunday school to an excited group of six-year-olds, I did this for ten years, through the years.  By the age of twenty-six, I was still teaching Sunday school; by this time, I was taking with me my three little girls, their daddy stayed at home.  Now, everyone is gone, my family from my childhood, the husband, and I have lost two of my five children. 

If for no other reason, I have to believe that Jesus existed and rose from the dead to enter his father’s Kingdom in Heaven, for if it is not so that would mean I will never see my family again.  So, with my time getting closer I celebrate that day and to grasp the idea that there is a Heaven and a Easter Bunny; in my mind’s eye a little curly headed child of a sharecropper is skipping on the green grass at the Rural Grove Baptist Church in Alabama hunting for eggs.  Sorry… I have to go; I see another colored egg in the tall grass by the Oak tree!

 

 

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Harnessed a few old thoughts today…

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My mother never had but one child and it was not “me”!  My mother never had but one grandchild, it was not among my own five children.  My mother never had but four great-grandchildren, my two are not among that accounting.  My mother had many great-great-grandchildren I have none to be in that accounting!

While working on my current writing project “Flying with Broken Wings”, I stop to write down a thought that would be in relation to my own autobiography that now comprises of many scraps of paper, some full sheets, including the back of many coffee house and diner placemats.  My “someday” autobiography.

The thought was to write a book about estrangement among family members.  This relates directly to my beginning paragraph.  After Google delivered its list to me, I realized that there is a slight possibility that every family in this world had problems with getting along with each other.  There are dozens of estrangement books, so my starting one is not necessary.   My home library beside many books on fiction and non-fiction consists of dozens of self-help books from emotional to the deranged brain; I have nothing on the family that hates.

 I quickly went to Amazon and ordered one that I thought interesting.  When it arrives, I will read and store with the other books on “real life issues”.  I love to read, and I see my family and myself in these books.  I do not need to learn how to confront family; ninety-nine- percent of them are dead; the other one-percent is dead to me!  These percentages consist of my birth family, mother, father, siblings, and nieces, etcetera.   

In general, I have read articles about family estrangement, mothers, fathers, siblings and the cold war of ending communication.   It is not about who got the spotlight in the family, to me it is about how one selfish act of my own mother changed the dynamics of my entire family.  There are many books and articles about this subject, but I found there are few statistics on the subject of family estrangement. 

If I had to make a statement about why family members cease to speak to each other, I would say one reason is intolerance.  Family members are unwilling to be their real selves and share their real feelings.  Living in a family with estrangements is extremely painful and can be debilitating.  I usually say, these people wear “rose colored glasses”.

Is healing possible, maybe, but my own healing is impossible due to death or stubbornness of these people.   Therefore, I believe that healing starts within, willingness or unwillingness of communication lies with the parting family member.  I chose the path of healing myself, making peace with myself, knowing that I have tried more times than anyone to reach out to family members.  They return to the “circle” of family only to push those who tried to love them away.  I find them to be hypocrites and unworthy of my love.  I have peace of mind, I will be okay, and the scars will heal.  The secret is time.  I call it the “Seven Decade War”! 

Have a great weekend.

 

 

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The Coffee Table…

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This is a very, very short story of a long marriage that “ends” after thirty-six years with spurts of happiness and much tribulation; the end came over twenty-five years ago. Now that the logistics is out of the way, this numeric information is relevant to the title…the coffee table. 

I chose to end the marriage that had been filled little happiness and many tumult periods from the beginning.  It is important to know that before ending such a marriage my children were adults.  I walked away on a sunny June morning with a suitcase, my dog and a rented car.  I did not want anything that was a part of my past.  The coffee table bought in the mid-sixties was going to be tossed in the mid-nineties; it had been in the basement of my sons’ home.  Cleaning time. 

I said yes, I would take it.  Somehow it meant something to me; the only thing that I would have from my marriage.  This ageless contemporary piece of furniture carried with it many memories.  Shopping for furniture in 1979 was during a better time, my then husband and I spent an entire day searching the stores until the one meant for us was found.  A few days later the table would be tossed across the room in a rage of madness, the inside frame broken.  I repaired the table and it was like new.

It would appear that the coffee table itself was somehow demonic.  Over the period of ten-years, the coffee table would split open the chins and one cut above an eye of two boys wrestling in the living room.  It placed cuts on grandchildren that tripped and fell on its corners.  It left bruises on shins of the entire family who chose to hurry around the object of discussion.

 

It had its good moments too.  It served as desk where hundreds of thousands pages of homework was done.  Throughout its “life” served as step stool, craft table, coloring table, and eating and snack table.  It has held plants, books and other things during the different seasons.  I smile as I think back at the many good times my children and I had sitting around this table when my husband was out of town.  We glorified the days without chaos.  When I received the coffee table, I painted the dark wood white, a pure color that would remove all turmoil significance.  Throughout these past years, it has been repainted the same white many times.

This brings me to the present and for the record, I have stated many times that the table is being held together by the paint.  Apparently, it was…my four-year-old grandson used it as a bounce board and then I sat on the table to talk to my granddaughter and poof; I ended its life and an era.

 

Well you would not believe the “moans” from my children, “ah can’t it be fixed”?

 

There was no pain in its exodus from my home, well maybe a little as it was heaved into the trash.  I suddenly understood that I had held onto it for the memories, memories that are embedded deep within me.  The good ones I will keep, the bad will soon be hauled away.  I thought about what could have been and never was; time wasted, and I looked for the last time at the only thing that was left of a long marriage… the coffee table.   

 

 

 

©2017.elizabethannjohnsonmurphree

 

 

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CANCER RUN

This post is about helping my son fight for Cancer.

https://www.firstgiving.com/fundraiser/chuck-murphree/living-journeys-half-marathon

Image may contain: 1 person, sitting, ocean, outdoor and waterChuck Murphree

 

LIVING JOURNEYS

Living Journeys Half Marathon
7/29/2017
Mt. Crested Butte, Colorado

Chuck Murphree’s Page

Thank you for visiting my fundraising page!

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

 

 

 
 

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